Turns out while Boston Children's Hospital is about the best there is, it wasn't the best for Brady. After a five day stint of stress and tests and more stress, our little man is back in capable and loving hands at Newton Wellesley Special Care Nursery. He has been on a "hunger trial" (for the second time) where his tube is pulled out and he's thrown in the deep end to see how much he will eat on his own. He's doing ok. Not great. If tomorrow he is still not taking enough his Naso-gastric tube goes back in as there is no sense in the boy being hungry and not growing.
My relief at having him close to home again is indescribable. Having a new plan with his neonatologist team feels even better. Here's the deal. One of two things can happen. Anytime in the next 10ish days his feedings will click and he can come home! It's possible. It happens sometimes around 43-44ish gestational weeks for a baby like Brady born at 28 weeks. Or, if he isn't clicking, then we will strongly revisit the g-tube option (which Children's declined to give him) so as to get this child home before he is walking.
The light at the end of the tunnel is back. Just thinking about it makes my shoulders unknot a little bit. Here is Brady three weeks ago right after his first failed "hunger trial." I am biased, but I think he's a very attractive child.
And here is my chubbers 42 weeks and 4 days today sans tube. And the look on his face tells you how he feels about being back with his Auntie Nurses and NWH. Get a load of those jowels and cute cheeks! And we have no idea where he got that Superman cleft chin
Sorry for the Hobbit reference in the post title. Nerdage hereby exposed.
Weekend Wandering 6.25.16
1 day ago